Life with PH

Collection by PHighter Tess


Living life with the incurable condition, Pulmonary Hypertension

PHighter Tess
Pulmonary Hypertension - No Cure Always Hope

Pulmonary Hypertension - No Cure Always Hope

This video was created to celebrate my 10th PH Anniversary and to help to raise awareness for Pulmonary Hypertension. Thank you for watching,You can email Te...

So I get all this info from PHA-UK. What an amazing charity we have supporting us! ❤️

So I get all this info from PHA-UK. What an amazing charity we have supporting us! ❤️

Move the tab to 2:18:00 to hear my interview of raising awareness for PH

BBC Essex - Ronnie Barbour, 20/09/2017

Ronnie's Got Issues and he's talking to you about Your News.

My interview on my daily life of living with PH

Tess Jewson - my life with pulmonary hypertension

Music therapist Tess Jewson is 27 and lives in Chelmsford in Essex. She has been living with pulmonary hypertension for ten years.Find out more about Tess Je...

No Cure Always Hope

A blog about Pulmonary Hypertension and Eisenmenger Syndrome. #NoCureAlwaysHope

Voices of patients with PH #BreathlessNotVoiceless

What it means to live with pulmonary hypertension today

In 2016, 563 people affected by pulmonary hypertension shared their voices in our third major survey into what it’s like to live with the serious condition.

Live Life To The Full: PH Awareness

PH Awareness

Dear Readers, Our amazing charity, PHA-UK have created a new website called PHocus2021 and this is to help raise more awareness for our invisible condition, Pulmonary Hypertension! As part of this campaign a few PH patients travelled to Sheffield in July to take part in a video to help raise awareness. We have spoken about what it is like to live with Pulmonary Hypertension and how it affects us in every day life. We all have PH, but we all have a different outlook on this condition and how…


Mr & Mrs Jewson Gosfield Hall - 27th April 2017 The best day of our lives and I was well enough to walk down that aisle without any mobility help! Bring on our Honeymoon next year!

PHA UK Conference 2017

Hello Readers, Not sure who or what PHA-UK are or do... click here to find out more! They are a small charity, but have the biggest heart - literally! They do so much for those with and who care for us PH'ers! All the money they use is from the donations of their supporters. They are not government funded, but they fight tooth and nail to support us and get the treatment we need! Please help support them and have a read of all the great things that they do - Thank you! My husband and I…

Live Life To The Full: Chronic Pain with PH

Chronic Pain with PH

Hello Readers, NB: This blog post is of my own opinions and experiences and must NOT be taken as generic for everyone or as medical facts or advice. Chronic Pain - What is it? Chronic Pain is long - term pain that lasts longer than 12 weeks. The physical effects of chronic pain include, tense muscles, limited mobility, lack of energy and changes in appetite. Emotional effects include depression, anger, anxiety and fear of re-injury. This fear may hamper a person's ability to return to normal…

Research reveals impact of rare heart and lung disease

Research reveals impact of rare heart and lung disease

People diagnosed with the rare heart and lung disease pulmonary hypertension experience a significant reduction in their quality of life, research has found.