Explore Mount Sinai, Ehlers Danlos Syndrome and more!

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Dr. Daniella Kadian-Dodov ~ Mount Sinai, NY

Dr. Daniella Kadian-Dodov ~ Mount Sinai, NY

Sherene Shalhub MD MPH   Cardiothoracic and Vascular Surgery  Assistant Professor of Vascular Surgery at the University of Washington

Sherene Shalhub MD MPH Cardiothoracic and Vascular Surgery Assistant Professor of Vascular Surgery at the University of Washington

Upper Makefield student wins Miss Pa. Teen competition, headed to nationals:  “[Ehlers Danlos Syndrome] affects you kind of like arthritis and makes everything really sore all the time and makes joints easy to slip out of place,” said Camille. “I have the mild form, but it’s caused me to have some bad injuries in sports. I’ve been accused by coaches of lying about why I get injuries, and that’s one of the reasons I wanted to raise people’s awareness of the condition.”

Upper Makefield student wins Miss Pa. Teen competition, headed to nationals: “[Ehlers Danlos Syndrome] affects you kind of like arthritis and makes everything really sore all the time and makes joints easy to slip out of place,” said Camille. “I have the mild form, but it’s caused me to have some bad injuries in sports. I’ve been accused by coaches of lying about why I get injuries, and that’s one of the reasons I wanted to raise people’s awareness of the condition.”

Edith Y Cheng, MD, MS Professor Obstetrics

Edith Y Cheng, MD, MS Professor Obstetrics

Dr. Rhonda Schnur, MD | Genetics Program (Pediatric) | Cooper University Health Care - New Jersey

Dr. Rhonda Schnur, MD | Genetics Program (Pediatric) | Cooper University Health Care - New Jersey

Heidi M. Connolly, M.D. -  Mayo Clinic Cardiovascular Diseases

Heidi M. Connolly, M.D. - Mayo Clinic Cardiovascular Diseases

Dr. Shweta Dhar, Medical Director of Adult Genetics at Baylor College of Medicine, spoke about “Coordination of Care in Adults with EDS”. - Learn more at: ht...

Dr. Shweta Dhar, Medical Director of Adult Genetics at Baylor College of Medicine, spoke about “Coordination of Care in Adults with EDS”. - Learn more at: ht...

Pamela Trapane, MD | Genetics Pediatrics Iowa City, IA

Pamela Trapane, MD | Genetics Pediatrics Iowa City, IA

Heather Gornik, MD Cardiovascular/Vascular Disease Cleveland, OH

Heather Gornik, MD Cardiovascular/Vascular Disease Cleveland, OH

Dr. Tanya R. Altmann, MD

Dr. Tanya R. Altmann, MD

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