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#ButterflyChild Book http://www.butterflychildamothersjourney.com/?page_id=19     #EBawareness #stopEB #EpidermolysisBullosa #beinspired #grief #loss

Silvia Corradin Author of books related to Pregnancy Loss and Epidermolysis Bullosa

I thought how hard it was for us hominids to learn to accept this raw deal we get with life. yes, we live, but, for how long? So many die at birth, many more die young, some precious few live to be 100. Yet all of us know we will die eventually and all we truly have is today to enjoy. #ButterflyChild http://www.butterflychildamothersjourney.com      #EBawareness #ebaware #stopEB #EpidermolysisBullosa

I thought how hard it was for us hominids to learn to accept this raw deal we get with life. yes, we live, but, for how long? So many die at birth, many more die young, some precious few live to be 100. Yet all of us know we will die eventually and all we truly have is today to enjoy. #ButterflyChild http://www.butterflychildamothersjourney.com #EBawareness #ebaware #stopEB #EpidermolysisBullosa

#ButterflyChild Book http://www.butterflychildamothersjourney.com   #EBawareness #stopEB #EpidermolysisBullosa #beinspired #advocacy

Silvia Corradin Author of books related to Pregnancy Loss and Epidermolysis Bullosa

I decided to make a change on the way I change bandages so they would be less painful, less of a "big deal"... ~Silvia Corradin from the Book "Butterfly Child" facebook.com/butterflychildbook

I decided to make a change on the way I change bandages so they would be less painful, less of a "big deal"... ~Silvia Corradin from the Book "Butterfly Child" facebook.com/butterflychildbook

I found it interesting how our society expected parents of severely chronically ill children to have all sorts of extra cash available, and let's not forget time galore.  ~Silvia Corradin

I found it interesting how our society expected parents of severely chronically ill children to have all sorts of extra cash available, and let's not forget time galore. ~Silvia Corradin

#ButterflyChild Book http://www.butterflychildamothersjourney.com     #EBawareness #stopEB #EpidermolysisBullosa #beinspired #advocacy

Silvia Corradin Author of books related to Pregnancy Loss and Epidermolysis Bullosa

#ButterflyChild Book Now Available http://www.butterflychildamothersjourney.com/?page_id=19   #EBawareness #stopEB #EpidermolysisBullosa

Silvia Corradin Author of books related to Pregnancy Loss and Epidermolysis Bullosa

From the Book "Butterfly Child" by Silvia Corradin http://www.butterflychildamothersjourney.com/?page_id=19

Silvia Corradin Author of books related to Pregnancy Loss and Epidermolysis Bullosa

I wondered if I had lost a foot, instead of a baby, if anyone would ask me if I was "over" it. Or if they would ask how I was doing learning to walk without my foot. We don't get over things; we have to learn how to live without them. #stillbirth #pregnancyloss #stopEb #Ebawareness http://www.butterflychildamothersjourney.com

Silvia Corradin Author of books related to Pregnancy Loss and Epidermolysis Bullosa

Not even I really know what it takes for Nicky to accomplish just the basics that every day entails. EB kids define the word brave. ~Silvia Corradin from the book Butterfly Child.

Not even I really know what it takes for Nicky to accomplish just the basics that every day entails. EB kids define the word brave. ~Silvia Corradin from the book Butterfly Child.

#ButterflyChild Book http://www.butterflychildamothersjourney.com       #EBawareness #stopEB #PregnancyLoss #beinspired #stillbirth

Silvia Corradin Author of books related to Pregnancy Loss and Epidermolysis Bullosa

#ButterflyChild Book Now Available http://www.butterflychildamothersjourney.com/?page_id=19  #EBawareness #stopEB #EpidermolysisBullosa #beinspired

Silvia Corradin Author of books related to Pregnancy Loss and Epidermolysis Bullosa

That has to be one of the hardest things on the planet, to have to pick out a headstone for your child. No one should ever, ever have to pick out a headstone for his or her child. To know that his beautiful name would have to be engraved into a headstone was beyond my grasp, utterly devastating. #ButterflyChild http://www.butterflychildamothersjourney.com     #EBawareness #ebaware #stopEB #EpidermolysisBullosa

That has to be one of the hardest things on the planet, to have to pick out a headstone for your child. No one should ever, ever have to pick out a headstone for his or her child. To know that his beautiful name would have to be engraved into a headstone was beyond my grasp, utterly devastating. #ButterflyChild http://www.butterflychildamothersjourney.com #EBawareness #ebaware #stopEB #EpidermolysisBullosa

Teaching the World about #EpidermolysisBullosa #EBawareness #wefightEB #silviacorradin #butterflychild

Teaching the World about #EpidermolysisBullosa #EBawareness #wefightEB #silviacorradin #butterflychild

#ButterflyChild Book http://www.butterflychildamothersjourney.com   #EBawareness #stopEB #EpidermolysisBullosa #beinspired #advocacy

Silvia Corradin Author of books related to Pregnancy Loss and Epidermolysis Bullosa

Every EB patient is different in every way, despite the diagnosis, even siblings or even twins, because they are still different in their personalities and the people that surround them, which, in turn, will make them react differently to life in general. #ButterflyChild http://www.butterflychildamothersjourney.com   #EBawareness #ebaware #stopEB #EpidermolysisBullosa

Silvia Corradin Author of books related to Pregnancy Loss and Epidermolysis Bullosa

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