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So many well-wishers often tell us they hope he'll be OK soon. The truth is, RDEB is degenerative. It gets worse and worse with age. He won't be OK soon or even unless a cure is found. ~Silvia Corradin blog.silviaskingdom.com

So many well-wishers often tell us they hope he'll be OK soon. The truth is, RDEB is degenerative. It gets worse and worse with age. He won't be OK soon or even unless a cure is found. ~Silvia Corradin blog.silviaskingdom.com

When fate deals you cards you not only did not expect, but were not ready or willing to face, it is devastating. ~Silvia Corradin

When fate deals you cards you not only did not expect, but were not ready or willing to face, it is devastating.

I've read many books that dance around the subject of survival in many ways, which help me a great deal and I find fascinating, from biographies to true stories of people that  literally survived against all odds. ~Silvia Corradin blog.silviaskingdom.com

I've read many books that dance around the subject of survival in many ways, which help me a great deal and I find fascinating, from biographies to true stories of people that literally survived against all odds. ~Silvia Corradin blog.silviaskingdom.com

It's called empathy. It's called listening, TRULY listening without feeling the need to compare or feel the need to put your 2 cents in. ~Silvia Corradin blog.silviaskingdom.com

It's called empathy. It's called listening, TRULY listening without feeling the need to compare or feel the need to put your 2 cents in. ~Silvia Corradin blog.silviaskingdom.com

Nicky refuses to be touched by hate. He's AMAZING. Nicky is the purest soul, he's the definition of LOVE. ~Silvia Corradin

Nicky refuses to be touched by hate. Nicky is the purest soul, he's the definition of LOVE.

I may not know much, but I am an expert in my child's needs, and you can bet on that. ~Silvia Corradin blog.silviaskingdom.com

I may not know much, but I am an expert in my child's needs, and you can bet on that. ~Silvia Corradin blog.silviaskingdom.com

Even with all this evidence on how much my wrapping is working, they are STILL telling me I wrap Nicky too much. I swear, it will never end. Isn't prevention key? ~Silvia Corradin blog.silviaskingdom.com

Even with all this evidence on how much my wrapping is working, they are STILL telling me I wrap Nicky too much. I swear, it will never end. Isn't prevention key? ~Silvia Corradin blog.silviaskingdom.com

#ebawareness Having a child with EB means having a house full of mass quantities of bandages and creams, all of which will only last a month. ~Silvia Corradin blog.silviaskingdom.com

#ebawareness Having a child with EB means having a house full of mass quantities of bandages and creams, all of which will only last a month. ~Silvia Corradin blog.silviaskingdom.com

If there was one thing I'd want everyone to know it's to please be aware that parents of special kids, especially those with lethal conditions, are hurting. Badly. ~Silvia Corradin blog.silviaskingdom.com

If there was one thing I'd want everyone to know it's to please be aware that parents of special kids, especially those with lethal conditions, are hurting. Badly. ~Silvia Corradin blog.silviaskingdom.com

For the longest time I felt that "bad things happen to good people" and that is what helped me cope. It worked well for me and I still spread the word 'til this day because that message is so powerful. ~Silvia Corradin blog.silviaskingdom.com

For the longest time I felt that "bad things happen to good people" and that is what helped me cope. It worked well for me and I still spread the word 'til this day because that message is so powerful. ~Silvia Corradin blog.silviaskingdom.com

As the years have moved on and EB has taken a toll on his body, just moving has become a source of great stress. That is sad for me, as a mom, to see. ~Silvia Corradin blog.silviaskingdom.com

As the years have moved on and EB has taken a toll on his body, just moving has become a source of great stress. That is sad for me, as a mom, to see. ~Silvia Corradin blog.silviaskingdom.com

Women are a swirl of emotions as it is and my husband often tells me how on earth we live longer knowing how conflicted we are inside all the time. We are. We are emotional bags and this sort of experience is like a tornado of emotions. Forget tornado, how about a category 5 hurricane? ~Silvia Corradin blog.silviaskingdom.com

Women are a swirl of emotions as it is and my husband often tells me how on earth we live longer knowing how conflicted we are inside all the time. We are. We are emotional bags and this sort of experience is like a tornado of emotions. Forget tornado, how about a category 5 hurricane? ~Silvia Corradin blog.silviaskingdom.com

While I encountered cruelty in my life before my children were born-and stillborn, I just didn't know how real it was until I became a special-needs mom. ~Silvia Corradin

While I encountered cruelty in my life before my children were born-and stillborn, I just didn't know how real it was until I became a special-needs mom.

When that storm hits, grab that umbrella and be kind to yourself, because life goes on. ~Silvia Corradin

When that storm hits, grab that umbrella and be kind to yourself, because life goes on.

While you stare at my child, is it too much to ask you to smile? A little smirk? A wave? Small talk? "Hey kido, having a good day?", anything will do. I promise you, he won't bite. #epidermolysisbullosa #stopEB #EBaware #SilviaCorradin #authorquotes #quotes #silviaskingdom http://silviaskingdom.com

While you stare at my child, is it too much to ask you to smile? A little smirk? A wave? Small talk? "Hey kido, having a good day?", anything will do. I promise you, he won't bite. #epidermolysisbullosa #stopEB #EBaware #SilviaCorradin #authorquotes #quotes #silviaskingdom http://silviaskingdom.com

Last night I came THIS CLOSE at crying myself to sleep. I simply don't understand why the people be in pain and struggle the hardest. I will never get it, and God better have an answer for me when I come through those pearly gates! ~Silvia Corradin blog.silviaskingdom.com

Last night I came THIS CLOSE at crying myself to sleep. I simply don't understand why the people be in pain and struggle the hardest. I will never get it, and God better have an answer for me when I come through those pearly gates! ~Silvia Corradin blog.silviaskingdom.com

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