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[VID] Rare Diseases, Loud Voices. #Novartis #Rare #RDD2016 #GetLoud

[VID] Rare Diseases, Loud Voices. #Novartis #Rare #RDD2016 #GetLoud

Global Genes Project - Leading Rare and Genetic Disease Non-Profit Organization - Building awareness and communities to support and find treatments for Rare Diseases and Genetic Conditions

Williams syndrome is a rare genetic disorder caused by the deletion of the long arm of chromosome A random genetic mutation (deletion of a small piece of chromosome rather than inheritance, …

I am very excited to make Rare Disease Day 2016 the focus of my first post for Scleroderma News. What is Rare Disease Day? From Eurordis.org: “Held each year on the last day of February, Rare Disease Day is an annual awareness-raising event coordinated by EURORDIS. The main objective of Rare Disease Day is to raise …

Rare Disease Day 2016: a Highlight on Scleroderma

The main objective of Rare Disease Day 2018 is to raise awareness with policy makers and the public of rare diseases and of their impact on the lives of patients, and to reinforce their importance as a public health priority.

The next Rare Disease Dayis February 28, 2018. The 2018 globaltheme is “Research”

The next Rare Disease Dayis February 28, 2018. The 2018 globaltheme is “Research”

World Rare Disease Day is an annual observance held on the last day of February (February 28th or February 29th in a Leap Year) to raise awa...

Today, February 2013 is Rare Disease Day. It is a day set aside, to try to shed light on the more uncommon diseases. In honor of Rare Disease Day, I wanted to bring to you a very simple expla…

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Building awareness and communities to support and find treatments for Rare Diseases

Rare Disease Day

Rare Disease Day 2016: a Highlight on Scleroderma

February 2012 is rare disease day. There are over rare diseases affecting people worldwide. A disease is considered rare if less than in the US have it. All eosinophilia disorders are considered rare.

Read about a study finding defensins and IL-8 to be higher in the lungs of patients with systemic sclerosis interstitial lung disease.

Systemic Sclerosis Patients with ILD Seen to Have High Levels of Defensins in Lungs

Study Highlights Effects of Shortness of Breath, Fatigue in PAH Patients& Quality of Life Pulmonary Hypertension News

Rare Disease Day is being observed at the NIH on Feb 29, 2016. You can either attend in person or listen to the lectures via webinar. #RareDiseaseDay #NIH

Rare Disease Day at NIH logo, February National Institutes of Health, Bethesda, Maryland

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