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AKent Speech 2

Rare Disease Event

Orphanet Delegates

Miriam Evans, Niemann-Pick Disease Group

Hilary Cass, RCPCH President speaking on rare disease

Alastair Kent introducing Earl Howe

Chris Verity, Anne Marie Winstone and Lesley Stellitano, Progressive Intellectual Neurological Deterioration research group.

Listening to speech

Chris Verity speech on rare disease surveillance

Earl Howe speech