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AKent Speech 2

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Rare Disease Event

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Orphanet Delegates

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Miriam Evans, Niemann-Pick Disease Group

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Hilary Cass, RCPCH President speaking on rare disease

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Alastair Kent introducing Earl Howe

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Chris Verity, Anne Marie Winstone and Lesley Stellitano, Progressive Intellectual Neurological Deterioration research group.

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Listening to speech

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Chris Verity speech on rare disease surveillance

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Earl Howe speech

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